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medicine never writes down

Patients, caregivers, and survivors writing honestly about what it actually feels like — with the hard parts left in.

Recent from the community
Parkinson's
The doctor who finally listened — how a three-minute test changed everything
Margaret H. · 3 hours ago
Rare Disease
Seven years to a diagnosis: a timeline of being dismissed
Priya N. · 2 days ago
Cancer
Being a father through chemo — the parts no one warns you about
David C. · 1 day ago
Autoimmune
The grief of losing a version of yourself you didn't know you had
Marcus T. · 3 days ago
Mental Health
What nobody tells you about getting better
Anonymous · 6 hours ago
Stories worth your time
Rare Disease
Seven years to a diagnosis: a timeline of being dismissed
The first doctor told me I was dehydrated. The fifth told me "young women often experience these kinds of symptoms" without specifying what kind or why. I have POEMS syndrome. It took a medical student — not an attending — to finally order the right test.
Priya N.·2 days ago4,201 upvotes
Cancer
Being a father through chemo
My son was six when I was diagnosed. Within two weeks he had started sleeping on the floor outside our bedroom door. He didn't say anything. He just appeared there with his blanket.
David C.·1 day ago
Autoimmune
The grief of losing a version of yourself
Before lupus, I ran. Just early mornings, three miles, a thing that was mine. I didn't understand how much of my identity lived in those mornings until the first flare made it impossible.
Marcus T.·3 days ago
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Stories from the community
Parkinson's

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